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Racer X Bassist John Alderete Updates Statement on His Condition By Newsferatu, Writer Friday, May 4, 2007 @ 8:53 AM
Alderete has new information about his condition and has sent the following updated version of his announcement:
To my friends,
I have recently been diagnosed with a rare blood disease called Polycythemia Vera. It is classified as one of the Myeloproliferative disorders. Myeloproliferative disorders are an overproduction of platelets, white blood cells, or red blood cells in the bone marrow, which may result in serious complications that include enlargement of the spleen and liver, anemia, bleeding, stroke, heart attack or leukemia. The survival rate varies greatly, but the key is working closely with my physician to manage my health.. You can read more about the condition at http://www.mpdfoundation.org/index.htm.
I am making this announcement public early because of the urgency of much needed donations! My disorder is considered an orphan disease meaning it affects fewer than 200,000 people. These disorders have been noticeably underserved with respect to research funding. Pharmecutical companies do not see much profit in 200,000 patients and the goverment tends to hand money to the bigger diseases plaguing our society.
I have agreed to help the MPD Foundation by asking all my friends and fans to become aware of this problem. You can reach out to your friends, and they can reach out to their friends until we have an army of supporters! Together we can help find a cure. You can help me and others living with this disease by donating to: http://www.mpdfoundation.org/donations.htm.
As for me, I am doing awesome. I feel great and ready to rock! I am relieved at this point to know exactly my condition, so that my doctor at the UCLA Medical Center can begin treatment immediately in order to mitagate any future symptoms. I will be on a drug called Hydrea to get my blood counts to normal levels. I have been told that the overwhelming majority of patients do not experience any physical side-effects from this treatment, which means - I will continue to rock the universe for you!
This is just the beginning of my attempts to raise money and awareness. I will keep you all posted on my endeavors and progress.
Love,
Juan
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